For October 2015, Surrey Hills Community Radio is pleased to support HemiHelp, by helping to raise the charity’s profile and inform the public about National Hemiplegia Awareness Week (12th to 16th October 2015).
HemiHelp was set up by a small group of parents in 1990. It has grown into a national organisation that has a membership of over 4,000 families and professionals from all over the UK and beyond. They provide information, support and run events for children with hemiplegia and their families as well as for professionals (medical and educational) involved in their care. Their work benefits professionals in the NHS, social services and schools who work with children with hemiplegia.
Hemiplegia is a condition that affects one side of the body. It is caused by injury to parts of the brain that control movements of the limbs, trunk, face, etc. This may happen before, during or soon after birth, when it is known as congenital hemiplegia (or unilateral cerebral palsy), or later in life as a result of injury or illness, in which case it is called acquired hemiplegia.
One child in 1,000 is born with hemiplegia, making it a relatively common condition. About 80% of cases are congenital, and 20% acquired.
The fourth Hemiplegia Awareness Week (12th to 16th October) will emphasise hemiplegia’s relationship to the brain, and help people with hemiplegia raise understanding in key ‘daily’ contexts where they may feel it the most – especially schools and workplaces.
Following a survey of the charity’s members and supporters, HemiHelp has developed a new tool called ‘My HemiCheck’. The innovative, new online tool has been designed to be useful for families affected by hemiplegia, providing a personalised summary of how hemiplegia affects that person. Designed as a ‘reminder’ or ‘introduction’ — and not a substitute for detailed assessments — the summary can be given to teachers, bosses, support providers, or anyone else the person with hemiplegia interacts with.
Surrey Hills Radio have the pleasure of interviewing
- Champion swimmer and Paralympian gold medal winner from London 2012, Josef Craig who will be sharing his experiences of growing up and managing hemiplegia all his life
- Rhys Jones, paralympic athlete who won bronze at the Commonwealth Games 2014 will be speaking about training for international competitions
- A thankful mother who has been helped by this amazing charity
- The proud CEO of HemiHelp
For further information:
Telephone: 0845 120 3713